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NCI Mover Longitudinal Study (MLS)

The National Core Indicators (NCI) Mover Longitudinal Study (MLS) is a quality assessment study added to the California NCI project. The MLS uses the NCI Adult Consumer Survey and the NCI Family Guardian Surveys. The NCI surveys were modified for the purposes of the MLS to ask questions specific to individuals who have moved from a developmental center (DC) to the community since January 2016. This page highlights details on the study design, unique survey features, results, and additional information on the MLS.

Study Design

Before July 2017

Under contract with the Department of Developmental Services (DDS), the MLS was designed by the University of California, Davis (UCD) to provide needed information to stakeholders and help DDS answer questions about how and why changes in services occur over time for people who move from a DC to the community.

Individuals who move out of a DC beginning on January 1, 2016, are contacted to participate in the MLS until there are 125 volunteer participants. Family members of individuals will also be contacted and asked to participate in the study. Face to face interviews with participants and mail in surveys with families will be conducted by the State Council on Developmental Disabilities (SCDD).

The MLS will describe changes in safety, health, and well-being after a move to the community at four different points in time (three months, six-months, one-year, and two-years). Additionally, family member perceptions of the quality of services received, system responsiveness, and overall satisfaction will be assessed over the same two-year timeframe. Individual and family results will be linked together for analysis.

After July 2017

The MLS study design was expanded by the Legislature in September of 2016 under Senate Bill (SB) 982 and will begin in July 2017. The survey tool, when it is distributed, and how the individual and family surveys are linked together will remain the same as the initial MLS study design. Under SB 982, the MLS will increase the total number of surveys analyzed from 125 to 250. The analysis will look and differences across the DC closures (Sonoma, Fairview, and the general treatment area of Porterville) and time at which an individual moves relative to the stage of the DC closure process.

Unique Features

There are some unique features that were added the MLS such as new questions, a user friendly section, and a supporter communication survey.

New Questions

The MLS has added questions to the NCI California Adult Consumer Survey and the Family Guardian Survey. These questions will examine an individual mover's and family member's experience of the transition planning meeting, the home and the services received in the community. To preview the new questions go here.

User Friendly Section

The NCI Adult Consumer Survey has questions that only the individual can answer for themselves and questions that allow for a proxy respondent (someone other than the individual can answer on their behalf). Due to the communication abilities of the individuals moving from DCs, most of the survey questions that are analyzed in the regular NCI Mover Surveys have been answered by a proxy.

The DDS and stakeholders wanted the individuals to have more opportunity to answer questions themselves. In response, the MLS has added a User Friendly section to the NCI Adult Consumer Survey. The User Friendly section took ten questions from the survey that only the individual receiving services can answer and adapted them into simplified language. These questions ask about their home, service coordinator, friends, and overall health. The interviewers also use photographs that correspond with the User Friendly questions.

The Supporter Communication Survey

Another way that the MLS is trying to increase individuals' responses is through a supporter communication survey. The SCDD contacts the individual’s home, the service coordinator and the direct support worker to gather background information about the individual. During this time, the support worker is asked an additional set of questions to learn how best to ask questions of the individual, how they communicate “yes” and “no”. The information gathered is then used during the survey.

Results

Data from the MLS will be used to help the Department of Developmental Services (DDS) and the regional centers monitor and improve the services and supports provided, identify and remediate gaps in the community services system.

Reports of findings will be compiled by UCD annually and submitted to the Legislature and posted on this website. Individual participants will not be identified in any reports of findings

Mover Longitudinal Study Information

 
 
Last Updated: 2/21/2017