Updates on the status of the program will be posted to this page as they become available. If you want to be notified when updates are made, please email firstname.lastname@example.org and ask to be included on the notification list.
The SDP will be available for up to 2,500 participants during the first three years of the program. Check this page often to learn about the implementation process of the SDP.
December 24, 2020
The Department has complied a summary of data for participants continuing in the Self-Determination Program (SDP) by regional center. While this data does not represent all the steps a participant may go through to enroll in the SDP, it does show significant steps along their journey. Most of the data is self-reported from regional centers but some comes from the Department’s informational systems. Headers on the document reflect the origin of the data points. The recent statewide summary can be found in the November 2020 document. Please note, in accordance with the Department’s Data De-Identification Guidelines, counts between one and ten have been suppressed. Future reports may look different dependent on the data collected.
December 8, 2020
The Department has complied a summary of data for participants continuing in the Self-Determination Program (SDP) by regional center. While this data does not represent all the steps a participant may go through to enroll in the SDP, it does show significant steps along their journey. Most of the data is self-reported from regional centers but some comes from the Department’s informational systems. Headers on the document reflect the origin of the data points. A recent statewide summary can be found in the October 2020 document. Please note, in accordance with the Department’s Data De-Identification Guidelines, counts between one and ten have been suppressed. Future reports may look different dependent on the data collected.
Beginning in December 2019, the Department has been sending out surveys to those selected participants who have voluntarily withdrawn from the Self-Determination Program (SDP). The survey is sent in preferred languages and gave the option to be completed on-line or via mail. The survey questions reflect input from stakeholders, including the SDP Advisory Group. The Department will be sending these surveys on a continuous basis. The questions in the survey and recently compiled results can be found in the SDP Withdraw Survey – September 2020 document.
In March 2020, the Department allocated funding to regional centers to support the implementation of the Self-Determination Program (SDP) in accordance with Welfare and Institution (W&I) Code section 4685.8(g). Due to COVID-19 and the resulting stay-at-home orders, the Department is extending the time for regional centers to encumber funds for the above purpose to September 30, 2020. Please see the guidance for more information on these funds. If you have questions, please address to email@example.com.
Since it is anticipated more openings will occur in the future, the Department selected more individuals than the current number of openings. The Department mailed notification letters to all individuals selected to communicate they can each start the enrollment process and attend an orientation at their regional center.
To find out if you were selected to participate, you may enter your UCI (Unique Client Identifier) number here.
Those who have not been selected to participate will remain on the list and the Department will continue to collect and add names of those interested in the program for potential subsequent selections.
Please send any questions to firstname.lastname@example.org.
Please send any questions to email@example.com.
Please send any questions to firstname.lastname@example.org.
More information about SDP informational meetings and the enrollment process is available at SDP Enrollment. Individuals can verify if they are on the list of those who will be considered for selection at SDP Verification.
The November 22, 2019 selection will be prioritized on the following:
- The total number of participants at each regional center is consistent with the relative percentage of total consumers served by all regional centers;
- Individuals who are age 42 years and older;
- Siblings of individuals who were previously selected for SDP;
- Members of SDP local volunteer advisory committees (as of October 8, 2019) or their family members;
- Maintain as close as possible the relative ethnic diversity within each regional center catchment area.
The number of current openings at each regional center can be found at SDP Regional Center Participation Count. The updated number of openings at each regional center will be posted to the Department’s website prior to the November 22, 2019 selection. Since it is anticipated that over time more openings will occur, the Department intends to select a number of individuals over the 2,500 slots. This over selection will allow for an expedited process to fill future openings.
Please send any questions to email@example.com.
With consumers not continuing in SDP, this presents an opportunity for others interested in SDP. The Department will select additional participants to replace those who are not continuing with SDP. More details about the additional participation selection, including the date of the selection, will be announced soon.
Please send any questions to firstname.lastname@example.org.
Redwood Coast Regional Center
1116 Airport Park Boulevard
Ukiah, CA 95482
Friday, March 15, 2019; 9:00AM – 4:00PM
The Department’s notification regarding these training sessions can be found here.
If you have any questions, please send an email to email@example.com.
Please direct any questions regarding the selection process to firstname.lastname@example.org.
The Department mailed notification letters to all individuals to communicate their selection status. To find out if you were selected to participate, you may enter your UCI (Unique Client Identifier) number here.
Those who were not selected initially to participate will remain on the list for subsequent selections if some of the initial 2,500 choose not to enroll or discontinue in the program. The Department will continue to collect and add names of those interested in the program for subsequent selections.
A description of the three FMS models and their rates are below. The range of maximum rates within each model are dependent upon the number of services funded from your individual budget as a part of your IPP.
- Bill Payer: Also known as the Fiscal Agent Model. When your services and supports are provided through an agency or company and you are not employing people directly, you would use the bill payer FMS model. The maximum rates for this model range from $50 to $100 per month.
- Sole Employer: Also known as the Fiscal/Employer Agent. When you have decided to hire people directly and you want to assume the role of an employer, this FMS model acts as your fiscal agent or employer agent and can advise you on some of your employer tasks. The maximum rates for this model range from $110 to $150 per month.
- Co-Employer: When you have decided to hire people directly, but do not want to assume the full role of an employer, this FMS model will maintain the primary employer relationship with the people you hire. As a co-employer, the FMS is the employer of record and you still choose who works for you. The maximum rates for this model range from $125 to $165 per month.
When you design your services and supports, they may fall within multiple descriptions of the FMS services described. In those cases, your rate for FMS services will be based on the highest rate of the combined descriptions. For example, if some of your services follow the bill payer model and some will follow the co-employer model, your maximum rates will be based on the co-employer model.
The Department, in collaboration with the self-determination advisory workgroup and other stakeholders, has been working on the major components necessary to implement the Self-Determination Program (SDP). Outlined below are some of the major components requiring completion prior to the SDP becoming operational. The list below is not exhaustive but includes the key components and steps under active development.
The Department will post updates on the progress of each component.
- Federal Funding Approval
Status: Completed. The application for federal funding, or Waiver, was approved by the Centers for Medicare and Medicaid Services on June 6, 2018.
- Individual Budgets – Target for completion: September 28, 2018
Task: Finalizing guidance information on how the individual budget amount is calculated, and the process for adjusting the budget when needed.
- Financial Management Services (FMS) – Target for completion: August 31, 2018
Task: Finalizing FMS vendorization requirements and rates.
- Independent Facilitators – Target for completion: August 31, 2018
Task: Defining the role(s) an independent facilitator may play and how this may be different if a participant chooses to select their service coordinator to fulfill the functions of an independent facilitator.
- Participant Selection – Target for completion: October 1, 2018
Task: Selection of the initial SDP participants. It’s important to note that only those individuals who have participated in an informational meeting and whose names have been received by the Department by September 17, 2018 at 5:00 PM will be considered for selection (by the Department) of the initial 2,500 participants in the SDP. Individuals whose names are received after September 17, 2018 will be considered for subsequent selections of SDP participants. Subsequent participant selections will occur if some of the initial 2,500 participants choose not to enroll or they enroll, then decide not to continue in the SDP. Timing for future selections will be established at a later date. Information for those who are interested on how they can be considered for participation in the SDP can be found here.
- Home and Community-Based “Settings” Requirements – Target for completion: October 31, 2018
Task: Finalizing training materials on the federal requirements, how they apply to services in the SDP and the assessment process for ensuring all services, or “settings”, meet the requirements. Due to federal regulations effective in March 2014, everywhere someone receives services (e.g. the “setting” where the service is provided,) must promote, and not prevent, community participation and inclusion. The target date projects time needed to provide training to those who will be involved in the assessment process.
- Orientation Materials – Target for completion: October 31, 2018
Task: Finalize all orientation materials. The orientation materials will form the basis of the information participants need to support them in the SDP. In addition to the components above, the orientation will include information on what services are available in the SDP and tools to help participants choose qualified service providers. Training for those providing these orientations will also be necessary prior to participant orientations.
In October 2013, Governor Edmund G. Brown signed Senate Bill 468, authored by Senators Bill Emmerson and Jim Beall and co-authored by Assembly Members Holly Mitchell and Wesley Chesbro, into law. This law, championed by remarkable and determined self-advocates, family members and advocacy organizations, established a statewide Self-Determination Program that adheres to the following principles to ensure those who participate have:
- Freedom — to exercise the same rights as all citizens; to establish, with freely chosen supporters, family and friends, where they want to live, with whom they want to live, how their time will be occupied, and who supports them;
- Authority — to control a budget in order to purchase services and supports of their choosing;
- Support — including the ability to arrange resources and personnel, which will allow flexibility to live in the community of their choice;
- Responsibility — which includes the ability to take responsibility for making decisions in their own lives and accept a valued role in their community, and
- Confirmation — in making decisions in their own lives by designing and operating the system that they rely on.
Self-determination in California began almost twenty years ago as a small pilot project in limited areas of the state, with the intention of eventually expanding the program statewide. The time from the start of the pilot project, to Governor Brown’s signing of the law in October 2013, to now has only heightened the desire to implement self-determination broadly in California.
While approval of the Waiver represents the key step towards implementation of the Self-Determination Program, the Department and the self-determination advisory workgroup must continue to focus on finalizing program components for implementation. Providing information and support, in particular training and orientation materials, needed to assist those who are selected and choose to participate is central to implementation and is in the final stages of completion. We remain committed to implementing this important program and look forward to the continued collaboration, not only with the Department’s advisory workgroup, but also the local volunteer advisory committees and the Statewide Self-Determination Advisory Committee. The Department will publish a timeline with key dates for implementation by June 18, 2018. Updates will be posted on the Department’s dedicated website page for Self-Determination here. If you would like to be notified of future updates about Self-Determination, please send an email to email@example.com. Information for those who are interested on how they can be considered for participation in the Self-Determination Program can be found here.
Follow the links below to view the proposed list of services and a draft of the definitions. If you would like provide feedback or have questions, please email firstname.lastname@example.org.
We are very appreciative of the significant efforts of the Department’s Self-Determination advisory group and other stakeholders that have been instrumental in assisting the Department in completing the Waiver application. We look forward to this continued partnership to complete the other steps necessary to implement the program. Updates will be posted as we progress toward implementation.
Detailed meeting notes can be found here.
Detailed meeting notes from December 6, 2017 can be found at SDP Workgroup Meeting.
Detailed meeting notes from October 30, 2017 can be found at SDP Workgroup Meeting.
Detailed meeting notes from September 26, 2017 can be found at SDP Workgroup Meeting Notes.
The training is designed as a train-the-trainer meeting, and will be specific to learning how to conduct a SDP Informational Meeting. The SDP Informational Meeting is required before an individual can be added to the candidate list from which the Department will randomly select the first 2,500 SDP participants. This training is open to regional centers, local consumer or family-run organizations, and community-based organizations interested in voluntarily conducting SDP Informational Meetings in their region. A community-based organization is a public or private organization of demonstrated effectiveness that is representative of a community, or significant segments of a community, and provides educational or related services to individuals in the community.
A letter was sent to community-based organizations on August 18, 2017 which can be found at How to Conduct an Informational Meeting. Informational Meeting training dates can be found at SDP Informational Meeting Notice.
Questions about these trainings can be submitted to the Department via email at email@example.com.
Questions about this process can be submitted to the Department via email at firstname.lastname@example.org.
SDP Local Volunteer Advisory Committees
All local volunteer advisory committees formed to provide oversight of the SDP have met at least once. California Government Code requires that these meetings to be open to the public and conducted in accordance with all the requirements of the Bagley-Keene Open Meeting Act. See the memo that was forwarded to regional center executive directors.
The following is an update on activities and information related to implementation of the Self-Determination Program (SDP); specifically, the status of the SDP Home and Community-Based Services (HCBS) Waiver application to the Centers for Medicare and Medicaid Services (CMS); the establishment of the SDP Local Volunteer Advisory Committees; and, the SDP enrollment process.
Information related to the implementation of the SDP can be found at Implementation Update sent to Regional Center Executive Directors.
SDP Waiver Application Status
As required by law, securing federal funding is necessary to implement the SDP. To that end, an HCBS Waiver application was submitted to CMS on December 31, 2014. Subsequently, CMS asked follow-up questions related to recently enacted federal regulations and policies regarding 1) public input for Waiver applications; and, 2) federal requirements for HCBS settings. The Department, in conjunction with the Department of Health Care Services, has had a number of discussions with CMS and provided follow-up information CMS requested. CMS is currently reviewing the final draft of the plan to address the public input and settings requirements. During a conference call on May 1, 2015, CMS stated their conceptual agreement with the plan. As such, it is anticipated CMS will soon provide direction to move forward with the Wavier application. At that time, the revised Waiver application will be posted on the Department’s website for 30 days prior to being formally resubmitted to CMS. Once resubmitted, CMS will have 90 days to take one of three actions on the Waiver application: approve; deny; or request additional information. In the event CMS requests additional information to clarify other portions of the Waiver application, it is feasible that there may be an extended review period beyond the 90 days.
Additional SDP Implementation Activities and Updates
Federal approval of the Waiver application is just one of the many steps that must be taken prior to implementation of the SDP. Following are key updates:
- Local Volunteer Advisory Committees — As required by law, each regional center must establish a Local Volunteer Advisory Committee to ensure effective implementation of the SDP and facilitate the sharing of best practices and training materials. Members of these committees are appointed by the regional center and the Regional Office of the State Council on Developmental Disabilities (SCDD). The committee members must include consumers, family members, the regional center clients’ rights advocate, other advocates and community leaders, and must reflect the multicultural diversity and geographic profile of the catchment area. Based on an agreement between SCDD, the Association of Regional Center Agencies, Disability Rights California and the Department, each Local Volunteer Advisory Committee will establish their local advisory committee and hold their first meeting no later than July 1, 2015.
- SDP Enrollment Process — During the first three years of the SDP, enrollment is limited to 2,500 consumers. To guide the selection of these 2,500 consumers, the SDP stakeholder advisory group identified the following steps as necessary for a fair and equitable process.
- Outreach — Consumers and families must be aware of self-determination as an option. To assist with the provision of widespread outreach and awareness of the SDP, the Department is developing an informational video that features consumers and families currently in the self-determination pilot project as well as those who are interested in the SDP. The informational video, which will be available in multiple languages, will be completed in the summer of 2015.
- Information — Once aware of SDP, consumers and families must be informed about this new option, including the new opportunities and increased responsibilities. Therefore, interested consumers and families will be required to participate in an informational/pre-enrollment meeting covering topics identified by the Department, including, information regarding the principles of self-determination, the role of the financial management services provider and the development of an individual budget. It is important people have this detailed information prior to being considered for enrollment in the SDP.
- Selection — Regional centers will forward to the Department the names of those who have participated in an informational/pre-enrollment meeting and are interested in participating in the SDP. To ensure the SDP is available on an equitable basis, the number of participants in each regional center will be based on the relative percentage of total consumers served by all regional centers, minus the remaining self-determination pilot project participants. The Department will then randomly select the participants based on the following demographic factors within each regional center: age, gender, ethnicity and disability diagnosis. Consumers not initially selected will remain on the interest list for potential future openings. A more detailed description of the enrollment process is outlined in the link below.
- Self-Determination Program Enrollment
As required by law, securing federal funding is necessary in order to implement the Self-Determination Program. CMS has 90 days to take one of three actions on the Waiver application (approve; deny; or request additional information). It is very likely CMS will request additional information to clarify information in the Waiver application which will lead to an extended review period beyond the initial 90 days.
While CMS is reviewing the Waiver application, there is still much work to do including the development of training and informational materials regarding Self-Determination. We’ll continue to post progress updates on the Self-Determination Program website as we move toward implementation.
Progress updates will be posted at Self-Determination Program website.
If you would like provide feedback, please email email@example.com with any suggestions or input.
The advisory group meetings began in December 2013. Discussions to date have included determining the preferred option for seeking federal funding and establishing priorities for completing the many steps necessary to implement the program. Priorities established and progress thus far includes:
- Established training requirements that will be included in the Waiver application. Next steps include the development of training materials and the plan for providing training.
- Established workgroup to determine the services that will be included in the SDP and Waiver application.
- Established workgroup to determine the requirements for service provider background checks.
- Established equitable method for determining the number of SDP participants in each regional center for the first three years.
- Other priorities that will be addressed soon include:
- Establishing monitoring and oversight requirements
- Determining how participants will be selected during the first three years
- Establishing local advisory committees
Last modified: December 24, 2020